Q: Are they doing research to cure HSP? How’s that going? What about stem cells?
A: Yes, research is being done. The problem is, and the thing to understand, is that this is a very rare disease. It is listed on the official list of Rare Diseases with the National Institute of Health. It’s really rare. Therefore, there is only a relatively tiny amount of research currently being put into HSP and its cures. Right now, they haven’t even fully identified what’s going wrong in most types of HSP, nor do we even have a diagnostic test to identify easily when someone has HSP. I would imagine that finding those things will necessarily precede finding treatments and cures.
Research is ongoing, however. Currently, you can see more information on current research into HSP here: http://www.sp-foundation.org/research.htm.
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